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PRESS RELEASE. December 2, Warsaw – Poland: Data Lake has collected the first consents on the blockchain for patients’ medical data to be used by researchers. The company is an EU-funded startup that seeks to solve two of the biggest problems in medical science: access to medical data and biases in datasets.
In large parts of the world, researchers do not have easy access to high-quality medical data. The patient’s privacy and donor consent are two other core issues, and so far there has been no solution that guarantees both of these.
The Data Lake system seeks to remedy this by launching a global and consent-based donation platform for medical data. It uses distributed ledger technology and an advanced anonymization methodology to ensure that people can safely and securely share their medical data with scientists and researchers. For researchers, it means having a legal guarantee of the origin of the data, and the ability to know with absolute certainty that they are using data contributed with the consent of the patient. During the pre-launch phase, the company has already received more than 20 LOIs for consent-based medical data orders.
Going beyond data altruism alone, Data Lake has launched a new Consent-to-Earn model, which creates a tokenized ecosystem that rewards all participants – including donors – and aligns the interests of all stakeholders rather than favoring the big players. This gives people the opportunity to monetize their data themselves, which they have historically been excluded from accessing. They are launching the LAKE token on December 7th.
Data Lake is already collecting consents in several Polish healthcare facilities, in cooperation with the Polish Donate Your Data Foundation (Podaruj Dane). The foundation provides materials to patients and healthcare facilities, training for teachers, as well as spending time in hospitals to speak directly to patients about data donation, privacy and how they can help save lives by contributing to medical research. A significant percentage of patients are happy to share their anonymized data with researchers, and their oldest donor is in his nineties – proving that such a system has broad appeal.
Data Lake recently won the Ernst & Young Startup Academy award, and has attracted investment from a wide range of investors, including YCombinator founders through OrangeDAO.
Next year, Data Lake plans to expand their system across Europe, aiming to set an international standard for private and secure sharing of medical data.
About Data Lake:
Data Lake is building a global medical data donation system based on blockchain technology and with a consent-to-serve mechanism. They enable people to consent to the use of their medical data in a safe, simple and private way, while providing large data sets that revolutionize scientific research and medical studies. Their Consent-to-Earn model rewards those who contribute medical data to science.
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Press contact: Dinidh O’Brien
Contact title: Global Head of Public Relations
Contact email: [email protected]
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